Parenting My Toddler With Ehlers-Danlos Syndrome

Parenting My Toddler With Ehlers-Danlos Syndrome

I thought it would be an interesting exercise to spend a couple of days really tuning into my body and document every physical sensation, and some of the accompanying thoughts, to develop total awareness of my natural coping strategies dealing with my EDS symptoms.  It was an eye-opening experience as it made me realise just how much I have been operating on auto-pilot for so long, just getting through each day as best I can without really being aware of HOW.

Some of these symptoms have been going on for YEARS!  I’ve had the migraines since I was 17, the weak bladder ever since I was born (and having 3 full-term pregnancies hasn’t exactly improved that!), the lower back pain since I was a student in the early 90s. But a lot of the more ‘minor’ aches and pains I was never really fully aware of until now!


How To Give at Christmas, At NO Cost To Yourself!

How To Give at Christmas, At NO Cost To Yourself!

My sister has the same genetic condition as me and my children (Ehlers-Danlos Syndrome). She strives hard to live a normal life as much as possible and has such a strong spirit!

She has worked so hard over the years to make the best of what cards she was dealt with, but sometimes we all need a little help in life too! In order for her to treat some of her symptoms, she is having to have multiple painful surgeries over the next year, but the NHS don’t fund them either!


Your Doctor is Wrong!

Your Doctor is Wrong!


The doctors, media and news have been lying to us:

There is no one-size-fits-all in health.


The doctors, media and news have been lying to us: There is no one-size-fits-all in health. Click To Tweet


The latest fad diet won’t work for everyone. The newest

fat burning supplement won’t either. They may help a

select few, but most will be left wondering what to try



But what if I told you you there were a way to discover

the optimal lifestyle for you, right now? That it was

possible to find the diets, exercises, and personal and

professional conditions that would help you live a truly

fulfilled life? That instead of guessing, you could know

exactly what works for your body.


Until now, there was no simple way to access this knowledge.


All of that changed when I learned about ph360, a revolutionary

software app that uses your body’s measurements, condition

and lifestyle habits to calculate the ideal lifestyle habits

for you. ph360 provides a comprehensive and personalized

plan for every arena of your life, integrating ancient medical

science and modern technology unlike any other software in

the world.


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Foods to Eat

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Thought Explainer

Up to 24 specific insights into your neurotransmitters, hormones, and thought processes.

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Social Compass

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Step-by-step video guide to taking your measurements, and error recognition for large mistakes.

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Environmental Insight

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Smart Learning

When you give feedback, your PH360 learns more about you, and modifies advice accordingly.

Skill Calculator

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Visual Tracker

Track your progress – BMI, BFI, water content, lean muscle mass, fitness index, weight, and measurements represented in a simple visual graph.

Personalized Fitness

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People with EDS are Not Defective; We’re Superhuman!

People with EDS are Not Defective; We’re Superhuman!

A couple of days ago, my two sons and I went to see a genetic specialist, who confirmed a diagnosis of Ehlers-Danlos Syndrome.  To quote EDS UK, this is “… a genetic connective tissue condition that is a multi-systemic syndrome.  Connective tissue covers over 95% of your body so there is little that escapes the symptoms. ”  It’s been described as a genetic ‘defect’ or ‘mutation’, and one of the diagnostic signs is that it makes our joints extra flexible, so we can bend them beyond what  is considered normal.


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